Wednesday, October 14, 2009
Follow-up #1
He's still clean!
The CT scan showed that the blood clots have gone away and that there are no new masses or signs that the cancer has come back. His blood markers, CBC, and one other tests all came back normal. He also got some good news that he no longer has to take the Cumadin (spelling sorry?) blood thinners. He is really excited about that. That means that as far as they are concerned his body is as back to normal as it can be.
YAY for G!
The only bit of "bad" news is that instead of having to wait only a year to turn in mission papers he will have to wait two years. Apparently the first two years are the most likely time that the cancer could come back so they don't want him going anywhere during that time. But once he is cancer free for two years he is free to put in papers. It was a little discouraging but he was happy to know that all is well still.
Thanks to everyone for continued love and support.
Thursday, July 23, 2009
And the verdict is.....
CANCER FREE!!!!
The doctors in Utah said that the tumor is only about 2mm big and that since there is no other tumors left in his body they are almost positive that it is just scar tissue. They also said about 5 years ago and CT scan wouldn't have even shown a tumor that small.
So Garrett has to have blood work done in three months and then another CT scan in 6 months. Other than that for now the only thing he still has to do is take the blood thinners.
YAY!!!!!! Can I get a Woot Woot!
I think that we are planning on having a celabratory party soon...so stay posted for the details!
Sunday, July 12, 2009
CT Scan results
They had the CT scan on Wednesday and then headed to Twin to meet with Dr. Symingon his oncologist on Thursday for the results. They actually brought the results with them but Dad said he couldn't read what they said because it was so full of "medical mumbo jumbo".
When they got there Dr. Symington showed them what the scans showed. The tumors in his lungs are gone...but the two blood clots are still there. Much smaller than before but still there. If he was not in chemo and healthy the clots would most likely have dissolved by now but due to everything else it takes the body longer to dissolve. The blood clots are still a worry of sorts but not as major of concern as before since now they are much smaller.
The tumors in his lymph nodes are all gone too, except for one very small on one lymph node. Dr. Symington said she didn't want to make any decisions without consulting his other oncologist in Utah first. So Mom, Dad, and Garrett went shopping for a couple of hours while the Dr. called down to the Hunstman Center to discuss what the next course of action is. When they got back to the hospital a couple of hours later still no decision had been made.
Dr. Symington said that they have three options.
1- Do 2 more rounds of Chemo: She said this isn't really a good option because it has already done its job and his body has been through enough. His body has a harder and harder time making new white blood cells after every treatment so she really doesn't want to put him through more.
2- Remove the lymph node and the tumor: This isn't really a good option either due to the blood clots. While they are smaller in order to do surgery they would have to take him off of blood thinners and that could cause more blood clots and complications. It is a risk that she is not really sure is necessary at this point.
3- Do nothing and monitor the tumor to see if it really is a tumor or just scar tissue: This for obvious reasons isn't really the best option either. If it is a tumor and they do nothing it may grow bigger or spread again. They would do a CT scan again in 6-8 weeks to check on it and keep doing CT scans every 6-8 weeks to monitor it. Again, if it was a growing tumor than a lot could happen in 6-8 weeks.
Basically, Garrett is not the textbook patient. The doctor is uncomfortable with all three options. So what has been decided is that there is a Tumor Board that will meet in SLC to discuss all of Garrett's options and decide which is the best possible course of action in this situation. Apparently the Tumor Board meets when the course of action doesn't follow the normal protocal. The Tumor Board meets on Tuesday so we should hear something from them either Wednesday or Thursday.
Pray that their decision will be the most beneficial to Garrett and hopefully get this Cancer overwith!
Last Chemo Treatment.
This is a short little video of G at his last round of Chemo. It was really cool because I (Robyn) was able to take him. It was a really surreal experiance. This treatment was very short. They gave him a bag of saline to hydrate him and then gave him his chemo along with another back of Saline. It took only about and hour and 45 minutes or so. We watched a couple of CSI reruns on the TV. It was very surreal because the room where he gets chemo is just a really large open room with recliner chairs and cabinets everywhere. In each of the chairs was someone who was getting chemo. There were women and men, young and old. Each of them had someone sitting with them and a blanket wrapped over their legs. I was so grateful that I was able to share that with Garrett.
Wednesday, June 17, 2009
Three down...One to go...HOPEFULLY!!
He has another pulminary function test today so hopefully that will be a good indicator at how well he is doing. He also has to go every day to the hospital to get Pnuemagen (Spelling...no idea) shots. These shots help his body make white blood cells. If his count is too low they can't do Chemo.
Keep your fingers crossed that this will be the last round. Once they are finished they will schedule him for some various scans to check that the chemo "melted" the tumors in his lungs and stuff like they had planned.
We'll see!! :)
Thursday, June 4, 2009
Better LATE than NEVER....
This is the baseball team showing off their funny bald heads. Can you tell which one is G-baby? His head is the most white and shiny :)
Wednesday, June 3, 2009
Pathology Report
Drum roll please......
The tumor is now just a dead tumor with no more cancer.
This is SUPER news. The doctors kept telling us that there are two types of tumors. The kind that the Chemo doesn't penetrate and then kind that Chemo does. They always remove the tumor just to be safe...why take the risk....but apparently the Chemo is working. He started round 3 on Monday. He is only scheduled for 4 rounds. Once they are finished they will do another CT scan to see if the tumors in his lungs and stuff have "melted" away like they had anticipated. This news that the original tumor has been cleared of cancer is such a good indication.
If eveything keeps going like they plan, Garrett could be Cancer Free by July!!! Keep praying that things keep going textbook.
Thursday, May 28, 2009
Surgery
Mom and Dad drove Garrett down to SLC to the same IHC hospital where he stayed at the beginning. They met with the same Urologist that met with them when Garrett was there the first time. He is a really great doctor and they really felt like he knew Garrett's case best. He was taken into surgery around 1:30pm. It is just a quick surgery only lasting about an hour and 15 minutes. Afterwords he was transferred to a recovery room. After about 4 hours he was awake and keeping food down so they released him.
So, Garrett is at home but is unable to move around for a few days. He has to sleep in a reclined position for about 3 days. He is also in a little bit of pain from the surgery. He is doing very well though. The surgery went just as they had hoped.
He was supposed to be playing in the Shrine Football game next Monday. Since he will be unable to play, they still asked if he would come. So Mom and Dad will be taking him up to Boise on Monday with a wheelchair so that Garrett can attend the Shrine game.
Also, I will post about Garrett's graduation as soon as my Dad emails me the photos. :)
Friday, May 15, 2009
Seminary Graduation
Here is a group photo with Garrett and some of his friends following Graduation.
Wednesday, May 6, 2009
Round 2
He has two more rounds this week, Thursday and Friday, and then he has his next treatment on day 9 which is Tuesday of next week. Then on Wednesday he has Seminary Graduation....YAY!!! Then the next treatment is the following Tuesday on day 16, followed by High School Graduation on Wednesday.(GO CATS!) These next few weeks are going go by so quickly with everything going on. I think that is a good thing because this round will go the quickest.
Garrett also got the results of his pulminary function test. It is a test that they do to his lungs to see how much air they can hold and how much air he can push out. In the hospital when they did this test it was only at 75%, today's results were 95%. That is a huge improvement. They are really glad about that.
Wednesday, April 29, 2009
More Baldies!!!
And this is one of Garrett's best friends, Sam. He shaved his head last week too. Don't they all look so good with no hair? :)
Baseball Senior Night
The proud parents and their senior!
Monday, April 27, 2009
New Oncologist
G-baby was supposed to be having his last treatment of this cycle of chemo before cycle 2 starts next week but now they are going to skip it. They did a blood test to check his white blood cell count and it way too low to do Chemo. So instead he has to go to the hospital every day this week to get a shot that will help his body boost his white blood count. They said that it isn't "bad" per say but it is lower than they would like. So if you see Garrett walking around with a doctors mask more frequently that is why. We don't want him to get sick with something stupid like a cold and end up in the hospital.
Good news though: the doctor said the first round of chemo is a pretty good indication how the rest of them will go. So the fact that he hasn't been nauseated and sick is a good sign that he won't be for the rest of the treatments. Yay for that. Also, G has gained back 4 lbs! Mom has been catering to his appetite and it seems to be working.
G is still super tired but is getting used to it for the most part. His hair has started falling out (in other places than his head). I keep teasing him that he'll have smoother legs than all of his sisters!
Oh and the doctor said they may be doing the surgery to remove his testicle between the 2nd and 3rd cycles of Chemo. They are not 100% on that yet but it looks like that is where he's headed. If they do that they will probably go back to Salt Lake to have that done. We'll keep you posted.
Sunday, April 26, 2009
Support
Wednesday, April 22, 2009
Skin...
We probably had a little too much fun with the clippers. We gave him a reverse-mohawk to start (like on The Grinch) and then did one side and then the other.
When all was said and done, I think we were all pretty suprized how good Garrett's head was. No lumps bumps or wrinkles. He still looks good, even for a baldy. Now please let me apologize right now for the video. I took it sideways, and there's no way to fix that. Pictures I can turn, but for some reason the videos are stuck. So turn your head I guess :)
And then the two boys together with their white heads. I'm sure they'll color up in a couple weeks or so.
Monday, April 20, 2009
Saturday, April 18, 2009
Promenade...
Here's the video from Garrett's promenade. That huge cheer from the crowd brought tears to my eyes. More pictures from Prom are coming...
Thursday, April 16, 2009
Livestrong!
Welcome Home G-Baby!
Okay, the video is a little anti-climactic. But that's how it happened, so what can you do? We are so happy to have G-baby home. We've stocked up on lysol and germ-x (hand sanitizer) and spread it all throughout the house. Dad lysoled all the doorknobs and the hand-rail for the stairs.
First thing, when Garrett came home, we had to run to the pharmacy and get all his medications. I won't list them, but basicly it's stuff to help with the symptoms of chemo, and then his blood-thinners. I actually got to administer his blood-thinner injection, because apparently since I've given shots in the mouth, I'm most qualified to give one in the abdomen. Poor Garrett, he says that injection burns really bad when it's given. Luckily, it only lasts a couple minutes and then it's over. He gets that shot twice a day.
Today Garrett went to visit his baseball team, and then this evening went to watch the Junior Miss Pagent. With his immune system on the decline, he figured if there was ever a day that he should get out, it would be today. He actually had his white blood cells checked today, and the levels are low, but they haven't got down that much.... yet. They will continue to drop, and with it his ability to fight off sickness. I think it was pretty important to him to go to that competition though. Pictured to the right is Garrett and Paetyn after the pagent was over.
Wednesday, April 15, 2009
Another visitor
Home Sweet Home
Today Garrett had his last chemo treatment of the 5 day segment for this cycle. He is handling the Chemo exceptionally well. The PA from the Oncology Department has been so impressed at how well he is doing. So far, he hasn't felt really sick just really tired. He has also lost his appetite. Nothing sounds good or looks good to him. Despite the sleepyness and loss of appetite he is in really good spirits...being G-baby. (Should this suprise anyone....no). He is a fighter and he is doing so well. Hopefully the rest of Chemo will be this way. He is only 5 days in to cycle 1 of 4 but if it continues going the way it is now than it will fly by.
Also today Garrett had the filter removed from his vein. The filter is the little thing they put in through his neck to catch any blood clots before they went to his heart. The doctors have been checking his blood every 6 hours to make sure that it is the right consistancy. His blood is right where they want it which means they have his blood thinners to the correct dosage so they could remove the filter because their should not be any more clots. This is really good news because they thought they would not be able to remove it for several weeks.
By the way--G-baby wanted me to wish Peyton Goodluck tonight at Junior Miss. He really wishes he could be there. You'll do great! Good Luck!
Monday, April 13, 2009
Pictures from the hospital....
Garrett has had so many visitors at the hospital. Some cousins I've only met once or twice, lots of aunts and uncles, and even a few friends from High School.
Next are some pictures of just a few of the MANY posters he received. The first two are from the high school, but there are two more not pictured. And two of them are also practically full of signatures on the back as well.
And the lovely candy-grahm poster. I have to mention quickly about the peanut m&m's on the bottom right of the poster. You'll notice a little scribble on the bottom corner of the poster that says, "thanks for sharing." That bag of M&M's is empty except for 2. The signature below that: Rob Hansen. Garrett's young men's president. Didn't you know Garrett? All that candy is not for YOU! It's for you to share with your friends and family! We got a kick out of that.
And we couldn't have let G-baby spend so much time in bed without some entertainment! Here's Garrett sporting one of his MANY new beanies he got as a gift as he plays his x-box. It's too bad he'll be bald in the SUMMER, they need to invent a beanie that keeps your head COOL!
And finally, Garrett with his nephew Lucas. That boy has the most adorable smile! He got to spend five whole days with g-baby before going home to Las Vegas.
Sunday, April 12, 2009
Thanks whoever you are....
Here's a video of what we found when Dad, Parker, Katelyn and I got home.
We would just like to thank everyone once again for all the love, support and prayers. It has truly been felt by our family.
Today Garrett got his second round of chemotherapy. Today he got three medications instead of two, so it literally took about 3 and a half hours to get it all into his system. It's kinda interesting because those nurses wear a special gown, and gloves, and they place a barrier around Garrett's arm when they administer that stuff. It's pretty crazy that they're putting something so toxic they won't even touch it INSIDE of his body. But if it'll make the cancer go away, we're all for it.
Garrett got special permission to go down to the cafeteria today. According to mom, it was really nice for him to get off the 9th floor and have a little adventure. He got to take the elevator down to the main floor and get himself some ice cream.
Garrett has also had several visitors over the past few days. He's had LOTS of family come, as well as some friends from school. I know he is truly grateful for all the support, and I think he especially enjoys the company of his friends.
Katelyn and Jayne have taken several pictures at the hospital, that we are excited to post as soon as we can get a way to pull them off the camera and onto the computer. I'd just like to also add, that from my personal observation: G-baby seems to be in much better spirits over the past few days. I think the initial shock is over, and he seems very optimistic. He's being very friendly with the nurses and staff, and I've noticed a little bit of a light in his eyes this weekend.
Saturday, April 11, 2009
Chemo---Day One
It is not really "medicine" per say but more like poisenous chemicals that will kill the cancer. The bad part is that it will kill all/most of his white blood cells. The white blood cells are the cells in your blood that fight infections. The Chemo will severly hinder his body's ability to fight off even the smallest of infections ie...the common cold. It will be really important that any visitors that G-Baby gets (and I am guessing it will be a lot since everyone loves him) will need to make sure that they don't come over if they are sick. I know it will be hard but it will be important to Garrett's recovery that he doesn't get exposed to anything while his immune system is down. Also, if you do come be prepared to be sanitized by Mama Lyons....I think she is stocking up on Hand Sanitizer.
Garrett is so excited to be home in his own bed. The hospital beds really suck. Even the nurse said, "You know the beds cost so stinkin' much you thing they could make them comfy". If everything goes smoothly with the first five days of Chemo he should be home in Burley by Thursday. So far so good...they have given him a lot of anit-nausea medicine so hopefully he doesn't get too sick. We'll keep you posted. Keep praying for him.
Friday, April 10, 2009
News from Home
Thanks for all the support and prayers!
Heather Lyons
Thursday, April 9, 2009
MRI news
The results came back and....da da da....no cancer in his brain!!! Yay for small miracles.
Waiting it out in the hospital...
Here's a good picture of Jayne trying to cheer G-baby up. The bandage on his neck is from where they had to do a procedure. During this procedure they had to make a small incision in his neck and with tiny cameras they put a stent in his artery near his heart so that if any of the blood clots break lose the stent has a little "umbrella" that will catch it before it damages his heart. The doctors are just trying to make sure nothing happens to our good man's heart...he's gonna need it really soon for some baseball! (PS- notice his cell phone in his lap...I don't think he would have survived the first night without it glued to his hands :))
Times News Article
COLUMN: Like Lyons
Bobcats inspired by teammate
By Ryan Howe
Life just threw Garrett Lyons a curveball.Last Friday during Burley's baseball game with Hillcrest, Lyons left after the second inning, complaining of pain in his ribs. It had been a slowly escalating injury that was thought to have possibly stemmed from a spectacular diving catch Lyons made at the Buck's Bags Spring Classic the week before.He couldn't breathe well. He thought he had cracked a rib. He tried playing through the pain, but it kept getting worse, so bad he couldn't sleep at night.Without Lyons on the field, the Bobcats lost to Hillcrest. The next day, Saturday, Lyons didn't even stick around in the dugout to support the team as they got swept by Century in a doubleheader. It was their fifth straight loss, and it felt like the Bobcats' season could be heading down the drain. The players were confused, some a little hurt, that their leadoff hitter and best outfielder bailed on them.The most perplexing thing was, Garrett Lyons just isn't the type to abandon his team or let an injury keep him off the field. Even players from other teams thought it was odd. A Minico player in the stands Saturday said that something must be really wrong if Lyons isn't playing. He loves the game too much to sit out.After all, this is the same kid who flew around the football field with reckless abandon, taking on guys twice his size. He's nothing if not tough, strong-willed and good-spirited. Nothing could stop him from competing.That is, until Monday morning, when Lyons left school early to see a doctor. X-rays revealed cancer.Suddenly, a five-game losing streak didn't seem that important anymore."It's definitely a reality check," said senior captain Kace Redder. "We were all devastated after Saturday because we were like, man, what's going on with our season? Then when we found out about Garrett, we were like, man, this doesn't even matter. This is just baseball. This is just a game."Lyons was diagnosed with testicular cancer, one of the most curable forms. According to Burley coach Devin Kunz, the Lyons family said doctors are very optimistic that Garrett should make a complete recovery, but he still has a long, arduous road filled with surgeries and chemotherapy. If anybody can overcome adversity, though, it's Garrett Lyons.As for the team, the news hit them hard. "There is not one person in the 950 students and faculty that don't love and respect Garrett Lyons," Kunz said.On Tuesday, the Bobcats' minds were obviously elsewhere as they fell behind 7-1 to Jerome. However, before the game they held an emotional players-only meeting where they decided to play like Lyons: Go full throttle, stay positive, play scrappy and never give up.Was there any doubt that the inspired bunch would rally and beat Jerome 12-9?Just like there's no doubt the source of their inspiration will rally to beat his foe, too.Ryan Howe may be reached at 208-677-8786 or rhowe@magicvalley.com.
The Diagnosis
The diagnosis came by sheer luck. Dr. Grahmn thought to do a full chest x-ray to double check the pain in his rib. Anticipating a fracture he was shocked and sickened to look at the x-ray and see cancer spots in Garrett's lungs. Pale faced he entered the exam room where Garrett and Dad sat waiting. "It's not good" was one of the first things they heard and immediately Dad's heart sank. After the doctor explained what he saw in the x-ray they immediately had G-baby transfered over to the Cassia Regional Medical Center for further testing.
They started off with a CT scan of his body...what that revealed meant more bad news: Blood clots in his lungs. Immediately Dr. Grahmn called for an air transport team to life flight G-baby down to a hospital more equipped to deal with the events happing in his body. Unfortuately the air transport team would take too long so instead they assembled an ambulence transport team to transfer him to Salt Lake City
Upon arrival at the Intermountain Medical Center in Murray Utah he was met by a team of doctors: a team of 3 Internal Medicine Doctors, an Oncologist (cancer Dr), and a Urologist. These doctors immediately began working on figuring out what was going on.
The official diagnosis: Non-Seminoma Intermediate Testicular Cancer that has metastisized into his lungs and lymph nodes.
The normal treatment would be immediate removal of the cancerous testical and Chemo-Therapy. However, as you all know, G-baby is anything but normal. The blood clots are located in the lungs too close the heart for comfort therefore creating a problem for any surgery to take place. They decided against the removal of the testical and to move forward with Chemo-Therapy instead.
The plan going forward is that G-baby will start Chemo-Therapy here in Utah on Saturday. The chemo will take place after that up in Twin Falls. There will be 4 rounds of Chemo, each round lasting 21 days. Each round starts off with 5 days of two-hours per day treatments followed by one day a week treatments for the next two weeks. Then, 21 days later it starts all over again.
After all 4 rounds of Chemo they will take him to surgery to remove the testicle and then repeat all the CT scan's and chest x-rays to see where they are at. There is a really good chance that the four rounds of chemo will "melt" away the cancer. Please pray for that!